About NICOR

The National Institute for Cardiovascular Outcomes Research (NICOR) exists to improve the care and outcomes of patients with cardiovascular disease by providing high quality comparative information from national clinical audits related to heart disease. Clinicians lead the audits, working together with information management experts. NICOR provides its NHS partners with audit feedback that is used to monitor and plan how to improve the day-to-day quality of care for patients with cardiovascular conditions.

NICOR is part of the Institute of Cardiovascular Sciences (ICS) at University College London.

Governance

The National Congenital Heart Disease (NCHDA) Steering Committee represents key stakeholders including clinical, professional bodies and patient representation. The Steering Committee is responsible for promoting data collection within specialist paediatric centres through newsletters and user group meetings and monitoring audit data contribution and addressing issues as appropriate.

NCHDA Steering Committee Membership


NameJob TitleRepresentation
Dr Rodney Franklin (chair)Consultant Paediatric Cardiologist (Royal Brompton Hospital) and Congenital Heart Disease Audit Clinical LeadCongenital Heart Disease Audit
Dr Rob MartinConsultant Paediatric and Adult Congenital Cardiologist (University Hospitals Bristol NHS Foundation Trust)British Congenital Cardiac Association (BCCA)
Miss Carin Van Doorn Congenital Heart Surgeon, Leeds General InfirmaryChair SCTS Congenital Sub Committee
Mr David BarronCardiac Surgeon Birmingham Children’s HospitalSociety for Cardiothoracic Surgery (SCTS)
Dr Kate BrownConsultant Intensivist (Great Ormond Street Hospital)Research and Outcomes lead
Dr Kate EnglishConsultant in Adult Congenital Heart Disease Leeds General Infirmary)Adult Congenital Heart Disease
Dr Andrew TometzkiConsultant Paediatric Cardiologist (University Hospitals Bristol NHS Foundation Trust)British Congenital Cardiac Association (BCCA)
John Stickley Database Manager, Birmingham Children’s HospitalSurgical Data Manager
Bob WardPatient/Public representation
Dr Jiaqiu WangInformation AnalystNICOR
Dr David Cunningham Senior StrategistNICOR
Nadeem Fazal Service Manager NICOR
Tracy Whittaker Project Manager NICOR
Andrew Harrison Senior Analyst Developer NICOR
Lin Denne Clinical data auditor NICOR


History of CCAD and Congenital Heart Disease Data

Monitoring the survival rates after cardiac surgery was introduced in the United Kingdom in 1977 with voluntary submission of data to the Society of Cardiothoracic Surgeons of Great Britain and Ireland. CCAD was established to provide national analysis of outcomes of cardiac surgery and therapeutic cardiac catheterisation. It was developed by the British Cardiac Society, the Society of Cardiothoracic Surgeons, and the British Paediatric Cardiac Association. CCAD provides three major advantages over previous national audit projects:

· data is collected electronically in a secure format.
· mortality and reintervention are tracked centrally by using a unique patient identifier (the NHS number)
· independent data validation is used.

Associate Logos Healthcare Commisson Society of Cardiothoracic Surgery British Congenital Cardiac Association British Cardiovasculer Society