About NICOR

The National Institute for Cardiovascular Outcomes Research (NICOR) exists to improve the care and outcomes of patients with cardiovascular disease by providing high quality comparative information from national clinical audits related to heart disease. Clinicians lead the audits, working together with information management experts. NICOR provides its NHS partners with audit feedback that is used to monitor and plan how to improve the day-to-day quality of care for patients with cardiovascular conditions.

NICOR became part of Barts Health NHS Trust on 1 July 2017. It was formerly part of the Institute for Cardiovascular Sciences (ICS) at UCL (University College London).

Governance

The National Congenital Heart Disease (NCHDA) Steering Committee represents key stakeholders including clinical, professional bodies and patient representation. The Steering Committee is responsible for promoting data collection within specialist paediatric centres through newsletters and user group meetings and monitoring audit data contribution and addressing issues as appropriate.

NCHDA Steering Committee Membership


NameJob TitleRepresentation
Dr Rodney Franklin (chair)Consultant Paediatric Cardiologist (Royal Brompton Hospital) and Congenital Heart Disease Audit Clinical LeadCongenital Heart Disease Audit
Alan MageeConsultant Paediatric and Adult Congenital Cardiologist (Southampton)British Congenital Cardiac Association (BCCA) President
Miss Carin Van Doorn Congenital Heart Surgeon, Leeds General InfirmaryChair SCTS Congenital Sub Committee
Mr David BarronCardiac Surgeon Birmingham Children’s HospitalSCTS Congenital Audit Lead
Dr Kate BrownConsultant Intensivist (Great Ormond Street Hospital)Research and Outcomes lead
Dr Kate EnglishConsultant in Adult Congenital Heart Disease Leeds General Infirmary)Adult Congenital Heart Disease
Dr Andrew TometzkiConsultant Paediatric Cardiologist (University Hospitals Bristol NHS Foundation Trust)British Congenital Cardiac Association (BCCA) Interventional Cardiology Representative
John Stickley Database Manager, Birmingham Children’s HospitalCongenital Cardiology Database Managers Lead
Bob WardPatient/Public representation
Dr Jiaqiu WangInformation AnalystNICOR
Nadeem FazalService ManagerNICOR
Tracy WhittakerSenior Project ManagerNICOR
Sarah AjayiProject ManagerNICOR
Shenaka SingarayerProject coordinatorNICOR
Andrew Harrison Senior Analyst DeveloperNICOR
Lin Denne Clinical data auditorNICOR


History of CCAD and Congenital Heart Disease Data

Monitoring the survival rates after cardiac surgery was introduced in the United Kingdom in 1977 with voluntary submission of data to the Society of Cardiothoracic Surgeons of Great Britain and Ireland. CCAD was established to provide national analysis of outcomes of cardiac surgery and therapeutic cardiac catheterisation. It was developed by the British Cardiac Society, the Society of Cardiothoracic Surgeons, and the British Paediatric Cardiac Association. CCAD provides three major advantages over previous national audit projects:

· data is collected electronically in a secure format.
· mortality and reintervention are tracked centrally by using a unique patient identifier (the NHS number)
· independent data validation is used.

Associate Logos Healthcare Commisson Society of Cardiothoracic Surgery British Congenital Cardiac Association British Cardiovasculer Society