The National Institute for Cardiovascular Outcomes Research (NICOR) exists to improve the care and outcomes of patients with cardiovascular disease by providing high quality comparative information from national clinical audits related to heart disease. Clinicians lead the audits, working together with information management experts. NICOR provides its NHS partners with audit feedback that is used to monitor and plan how to improve the day-to-day quality of care for patients with cardiovascular conditions.
The National Congenital Heart Disease (NCHDA) Steering Committee represents key stakeholders including clinical, professional bodies and patient representation. The Steering Committee is responsible for promoting data collection within specialist paediatric centres through newsletters and user group meetings and monitoring audit data contribution and addressing issues as appropriate.
NCHDA Steering Committee Membership
History of Congenital Heart Disease Data
Monitoring the survival rates after cardiac surgery was introduced in the United Kingdom in 1977 with voluntary submission of data to the Society of Cardiothoracic Surgeons of Great Britain and Ireland. The Central Cardiac Audit Database (CCAD) was established to provide national analysis of outcomes of cardiac surgery and therapeutic cardiac catheterisation. It was developed by the British Cardiac Society, the Society of Cardiothoracic Surgeons, and the British Paediatric Cardiac Association. CCAD and now NICOR provide three major advantages over previous national audit projects:
· data is collected electronically in a secure format.
· mortality and reintervention are tracked centrally by using a unique patient identifier (the NHS number)
· independent data validation is used.
|Dr Rodney Franklin (chair)||Consultant Paediatric Cardiologist (Royal Brompton Hospital) and Congenital Heart Disease Audit Clinical Lead||Congenital Heart Disease Audit|
|Dr Rob Martin||Consultant Paediatric and Adult Congenital Cardiologist (University Hospitals Bristol NHS Foundation Trust)||British Congenital Cardiac Association (BCCA)|
|Miss Carin Van Doorn ||Congenital Heart Surgeon, Leeds General Infirmary||Chair SCTS Congenital Sub Committee |
|Mr David Barron||Cardiac Surgeon Birmingham Children’s Hospital||Society for Cardiothoracic Surgery (SCTS) |
|Dr Kate Brown||Consultant Intensivist (Great Ormond Street Hospital)||Research and Outcomes lead |
|Dr Kate English||Consultant in Adult Congenital Heart Disease Leeds General Infirmary)||Adult Congenital Heart Disease|
|Dr Andrew Tometzki||Consultant Paediatric Cardiologist (University Hospitals Bristol NHS Foundation Trust)||British Congenital Cardiac Association (BCCA)|
|John Stickley|| Database Manager, Birmingham Children’s Hospital||Surgical Data Manager |
|Bob Ward||Patient/Public representation |
|Dr Jiaqiu Wang||Information Analyst||NICOR|
|Nadeem Fazal|| Service Manager ||NICOR |
|Tracy Whittaker|| Project Manager ||NICOR |
|Andrew Harrison|| Senior Analyst Developer ||NICOR|
|Lin Denne|| Clinical data auditor ||NICOR |